BIG NEWS RESEARCH UPDATE: As of today’s date 88 DNA gene samples have been collected (of the 100 needed) from TN1 (Classical TN) patients at Oregon Health and Science University and are on the way to begin genetic testing in New Jersey to find the “problem genes.” DNA collection has been approved at our University of Illinois-Chicago Center – one of eight additional centers to gather 500 samples needed. We will keep you informed as more DNA Collection Centers are established.
Some Center’s prefer contacting prospective patients inviting them to participate in the study. Some Centers will welcome volunteers. Many have contacted the Foundation requesting information regarding participation and we are keeping a log of names and contact information as we receive them. If you have an interest in volunteering please contact Pam@facingfacialpain.org. We will need your name, address, diagnosis (must have/have had TN1 or Classical TN), place of diagnosis, your email address, and telephone number. Please do not contact the Centers directly. Your information will be forwarded to the Centers and if a Center is interested in you participating, they will contact you.
GET TO KNOW MORE ABOUT ONE OF THE THREE PRINCIPLE INVESTIGATORS OF OUR GENE RESEARCH PROJECT: Dr. Kim Burchiel’s interview by award-winning NY Times Journalist Mervyn Rothstein currently headlines our WebNewsPaper at http://www.faciangfacialpain.org. Visit the WebNewsPaper today to read more on why Dr. Burchiel does what he does and what he expects from the future of TN and gene therapy.
Source:
Pamela Unverzart
Communications Director
The Facial Pain Research Foundation
813-562-5375
trigeminal neuralgia 